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目標是保護約1500萬用戶的遺傳數據的隱私,為他們提供所有權並直接控制信息
After 23andMe announced its bankruptcy in the United States on March 23, the Sei Foundation, linked to the Sei blockchain network, announced its intention to consider acquiring the genetic testing company. The goal would be to protect the privacy of the genetic data of about 15 million users, offering them ownership and direct control of the information through secure and encrypted blockchain tools.
23AndMe於3月23日在美國宣布破產後,與SEI區塊鍊網絡有關的SEI基金會宣布打算考慮購買基因測試公司。目的是保護約1500萬用戶的遺傳數據的隱私,通過安全和加密的區塊鏈工具為他們提供所有權並直接控制信息。
Genetic data and blockchain: the proposal of the Fondazione Sei
遺傳數據和區塊鏈:Fondazione SEI的建議
The project, announced in a post published on March 27 on the official X account of the Sei network, aims to address an issue of growing importance: the security of bio-genetic data in the digital age, especially in contexts of financial instability like the current one of the American biotech company.
該項目在3月27日在SEI網絡的官方X帳戶上發表的一篇文章中宣布,旨在解決日益重要的問題:數字時代的生物基因數據的安全性,尤其是在金融不穩定的情況下,例如當前的美國生物技術公司之一。
The foundation stated that, in the event of an acquisition, it would transfer all genetic information onto the blockchain. This would allow, according to the promoters, to “return data ownership to users” through encrypted and confidential transfers.
基金會指出,如果收購,它將將所有遺傳信息轉移到區塊鏈上。根據發起人的說法,這將允許通過加密和機密的轉移“將數據所有權歸還給用戶”。
“We believe that sovereignty over personal data is a matter of national security. When an American biotech pioneer faces a bankruptcy situation, the personal genomic data of millions of people become vulnerable to entities that may not share the same values of transparency and open access.”, it reads in the official statement of the Fondazione Sei.
“我們認為,對個人數據的主權是國家安全的問題。當美國生物技術先驅面臨破產狀況時,成千上萬人的個人基因組數據變得容易受到可能不具有相同透明度和開放訪問價值的實體的攻擊。”
Bankruptcy 23andMe and genetic data privacy
破產23andme和遺傳數據隱私
These statements are part of a context of increasing attention to the management of sensitive information, particularly after 23andMe requested access to the protection provided by Chapter 11 at the Bankruptcy Court of the Eastern District of Missouri. The company has assured that this procedure will not result in “any change in the way customer data is stored, managed, or protected.”
這些陳述是越來越關注敏感信息管理的背景的一部分,尤其是在23andme要求訪問密蘇里州東區破產法院第11章提供的保護之後。該公司保證,此過程不會導致“對客戶數據的存儲,管理或保護方式的任何更改”。
However, the announcement has immediately reignited the debate on genetic privacy and the protection of digital rights. Several experts and authorities fear that genetic information, already stored on a large scale by private companies, could be at risk in the event of non-transparent acquisitions or forced asset sales.
但是,該公告立即重新激發了有關遺傳隱私和保護數字權利的辯論。幾位專家和當局擔心,在非透明收購或強制資產銷售的情況下,私人公司已經大規模存儲的遺傳信息可能會面臨風險。
Institutional reactions: call for data deletion
機構反應:要求數據刪除
In response, the procuratore generale dello Stato di New York, Letitia James, e quello della California, Rob Bonta, have publicly invited 23andMe users to contact the company to request the deletion of their personal data, including any DNA samples. According to the two officials, the current state laws fully recognize users’ right to privacy and management of genetic data.
作為回應,Procuratore Generale Dello Stato di New York,Letitia James,E Quello Della California,Rob Bonta已公開邀請23andMe用戶與公司聯繫,要求刪除其個人數據,包括任何DNA樣品。根據兩位官員的說法,當前的州法律完全承認用戶的隱私權和遺傳數據的管理權。
Blockchain and genetics: a new frontier for data security
區塊鍊和遺傳學:數據安全的新領域
The corporate crisis of 23andMe thus opens a potential window to experiment with new forms of decentralized management of personal information. In this context, the proposal from the Sei Foundation represents an innovative solution, supported by blockchain technology, which would allow completely transparent and traceable data management, while ensuring security and confidentiality through encryption.
因此,23AndMe的公司危機為實驗新形式的個人信息管理形式打開了一個潛在的窗口。在這種情況下,SEI基金會的建議代表了一個創新的解決方案,並由區塊鏈技術支持,該解決方案將允許完全透明且可追溯的數據管理,同時通過加密確保安全性和機密性。
Blockchain and genetics: a combination still in its emerging phase, but one that could mark a turning point in the field of bioinformatics. Through the use of distributed digital ledgers, individuals’ genetic information would remain under their full control. At the same time, the risk of data being transferred to third parties without consent would be neutralized, as often happens following acquisitions or corporate failures.
區塊鍊和遺傳學:一種仍處於新興階段的組合,但可以標誌著生物信息學領域的轉折點。通過使用分佈式數字分類帳,個人的遺傳信息將保持全部控制。同時,未經同意未經同意將數據轉移到第三方的風險將被中和,因為收購或公司失敗後經常發生。
Effects on the crypto ecosystem: the case of the SEI token
對加密生態系統的影響:SEI令牌的情況
Following the announcement from the Fondazione Sei, the SEI token of the namesake blockchain network experienced a brief bull, rising from 0.209 to 0.215 dollars, marking an increase of approximately 3%. A signal that the market has positively perceived the initiative, even though it is still in the preliminary phase.
在Fondazione SEI宣布的消息之後,同名區塊鍊網絡的SEI令牌經歷了短暫的公牛,從0.209上升到0.215美元,標準增長了約3%。儘管市場仍處於初步階段,但市場已經積極地認為該計劃的信號。
Technical and legal challenges of the acquisition
收購的技術和法律挑戰
However, there is no shortage of concerns: several observers highlight the technical, legal, and financial difficulties associated with an operation of such magnitude. The mere possibility of acquiring and transferring the sensitive data of millions of people does not guarantee greater security in itself, especially if the process is not accompanied by a clear regulatory framework, operational transparency, and direct involvement of the users.
但是,並不缺乏關注點:幾位觀察家強調了與此類操作相關的技術,法律和財務困難。僅獲取和傳輸數百萬人的敏感數據的可能性並不能保證其本身更大的安全性,尤其是如果該過程不伴隨著明確的監管框架,操作透明度和用戶直接參與的情況。
Digital sovereignty and bioethics in the blockchain era
區塊鏈時代的數字主權和生物倫理學
Furthermore, the theme of digital sovereignty and the protection of personal bioidentity requires today an in-depth reflection, both on the technological level and on the ethical one. The blockchain, while on one hand represents an opportunity to decentralize the control of information, on the other hand imposes new responsibilities in terms of data governance.
此外,數字主權的主題和對個人生物認同的保護需要今天在技術層面和道德上進行深入的反思。另一方面,該區塊鏈代表了分散信息控制的機會,但另一方面,對數據治理施加了新的職責。
It should be remembered that 23andMe collects and analyzes genomic information from millions of subjects worldwide. According to the company, the security protocols will not undergo changes despite the failing context. However, the possibility that this information could end up in third-party hands within a judicial process has raised the alarm.
應該記住的是,23andMe收集和分析來自全球數百萬受試者的基因組信息。據該公司稱,儘管上下文失敗,安全協議仍不會發生變化。但是,這些信息可能最終在司法程序中陷入第三方之手的可能性引起了警報。
Conclusioni: blockchain come garanzia per i dati genetici?
結論:區塊鏈作為遺傳數據的保證?
In summary, the intervention of the Fondazione Sei offers a concrete proposal to protect genetic data through blockchain, bringing attention back to one of the most delicate topics of the digital age: the control and ownership of personal information. Although still far from being realized, the acquisition hypothesis sheds new light on the future of biometric data management and could redefine
總而言之,Fondazione SEI的干預提供了一個具體的建議,可以通過區塊鏈保護遺傳數據,從而將注意力重新引入數字時代最精緻的主題之一:個人信息的控制和所有權。雖然尚未實現,但收購假設為生物識別數據管理的未來提供了新的啟示,並且可以重新定義
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